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Prayers and thoughts for Jordan.
Posted: Thu Apr 21, 2011 11:05 pm
by Nikita
My youngest (a trainee hunter

said with tears in my eyes ) has to go back into hospital next week on Thursday to have a minor procedure, though anything do to with the brain is never minor.
She has a brain tumour which was blocking the drainage duct of allowing the CSF to drain freely, even though she had brain surgery at 8 to put in a fake drainage system her brain has still been holding too much CSF on it which can cause major problems.
She'll be undergoing a procedure that will see how much pressure is being pushed/ held in the cranial cavity against the brain. If it's too much it will be full on brain surgery which will require a major drainage system, so everyone please say a prayer or have a thought for her in regards that it's good news next Friday.
Thank you Nikita.
Re: Prayers and thoughts for Jordan.
Posted: Fri Apr 22, 2011 9:11 am
by Jim Hocking
Tell her she can have my Brain. Hardly used, one owner, still heaps of storage space.
I pray all will be fine.

Re: Prayers and thoughts for Jordan.
Posted: Fri Apr 22, 2011 10:13 am
by The yowie Mrx
I wish all the very best for her.
Re: Prayers and thoughts for Jordan.
Posted: Fri Apr 22, 2011 3:55 pm
by Nikita
Thank you both for thinking about Jordan.
It looks like I'll be getting a shot of saline without the deadening patch lol. It was a deal I made with her because they have to shave her head and put on a deadening agent then insert the needle into her reservoir I think.
See being even the lowest rung on the nurses ladder you still know what happens.
Re: Prayers and thoughts for Jordan.
Posted: Sat Apr 30, 2011 2:24 am
by Nikita
To Dash and Mrx, I swear I will never go public again ARGHHHHH!
I don't care if she has to go into an adults ward but we will be going private.
Anyway we got mucked around most of Thursday before getting a call to come in at 1400 we booked in and she was allowed to go and play until around 1600. We were in a tiny room of six beds plus pull down beds for the parent and 1 toilet for the kids in the room. There was one shower/ bath for all the kids on the ward. The curtains that pulled around the bed looked like they had poo on them it was revolting and we went in as full paying private patients into a major children's hospital.They decided not to numb her head so luckily one of the doctors had an IPAD with new games so she played with that. They shaved a small patch of hair then got a needle thicker then a sewing one and jabbed her about 10 times before they found the spot to leave it. She was then attached to all the cords and it then had to be flushed etc so we got to see brain fluid run out.
Anyway after the worse bandaging I'd ever seen they left her. From 2100 to 2400 the machine stopped working it was only when I noticed that they called in the tech guy so here we were in the middle of the night redoing everything. Around 0800 it stopped working again so they got the junior docs to remove it and they did some other test by pumping extra fluid into her brain. Then undid it all and said they'd watch her for 4 hours.
They came back at lunch time and said all was good even though they only studied her for 13hrs rather then the 36hrs they were meant to and we had to just wait for her Doc to get back to them and we could go. Well I asked them a million questions because I wasn't happy with the way it was being handled. At 1330 I completely had it so I said I wanted to discharge, I got told I'd be going against medical advice as her doctor wanted to see me. 3 times I checked was it me or his juniors he wanted to talk to and I was told it was me.I assumed then that maybe he wanted to tell me something different to the juniors. So we waited from then and the nurses hadn't come near her once since the needle was removed to check her obs or anything they didn't even put an ID band on her and well we waited and waited till 2230 for the doc to arrive. He told me nothing new just said he had an emergency op come in as he had planned to see me after lunch. By then holding my tongue really politely I thought no I'm not going to get into it at this time of night when we were exhausted and still had over an hour to drive home. The thing is they have runners and scrub nurses and he could have used one of them to contact the hospital to let me know he was happy with the results and would ring me on Monday to discuss it further. Instead we waited nine bloody long hours, listening to a poor child come into the bed next to us screaming in pain non stop so I was trying to comfort the mother for most of the evening.
Anyway Jordans ok which is the main thing but I have certainly learnt my lesson, never go near a public one again.

Re: Prayers and thoughts for Jordan.
Posted: Sat Apr 30, 2011 4:17 pm
by Jim Hocking
Best thing is that Jordan is OK,

over time you will forget the rest.
Jordan. Tell mum to have a good sleep, and to stop being silly.

Re: Prayers and thoughts for Jordan.
Posted: Sat Apr 30, 2011 9:05 pm
by Nikita
Mum's still tired. I've got about 10 days to rewire my body from going to bed at 3am to 10pm at the latest ready for the new job.
Jordan will even be back at athletics training tomorrow if it doesn't rain. She's a bit upset that they shaved more hair then they said they would but I told her we'll just brush the hair over the bald spot and no one will know.

Re: Prayers and thoughts for Jordan.
Posted: Mon May 02, 2011 11:01 am
by AL Pitman
I had a brain inspection once , they didn't find anything !!
Good Going Jordan glad to hear that you are O.K.
IF YOU DO NOT LOOK YOU WILL NOT SEE !!!! !!!!
Re: Prayers and thoughts for Jordan.
Posted: Mon May 02, 2011 1:09 pm
by Jim Hocking
AL Pitman wrote:I had a brain inspection once , they didn't find anything !!
"Nothing in a Vacuum". Bull Sh*t , When I last had a look it was full of dust and dirt, sneezed for hours.
Go gettum JORDAN. Look after Mum as well.

Re: Prayers and thoughts for Jordan.
Posted: Mon May 02, 2011 10:13 pm
by Nikita
How about send mum crazy

I swear she needs to be gagged or something the doctors need to come and view her actions as they are totally inappropriate for a child her age and you can't tell me that all that fluid isn't contributing to that.
She also told me when we got home not when the did the last test that she felt very dizzy and sick when they pumped in the extra fluid will the docs believe me now if I ring them?
